I am excited about lending my energy, time and financial support to an organization that delivers such incredible work. Please join me on this bigger and bolder vision for GADA in 2023! Terri Lohnes
New Guidelines for Diagnosis & Management of Aortic Disease
The American College of Cardiology and American Heart Association joint committee on clinical practices issued new guidelines for the diagnosis and management of aortic disease, published in the Journal of the American College of Cardiology (JACC).
Tick, Tick...Boom! film offers opportunity to raise awareness of aortic dissection and genetic aortic disorders
On November 19, 2021 Netflix released the highly anticipated movie Tick, Tick...BOOM, a dynamic biography about the life of Jonathan Larson.
Larson, the brilliant composer of the Broadway hit RENT, died at age 35, from a misdiagnosed aortic dissection believed to be caused by his undiagnosed Marfan Syndrome.
Liz Martin's fundraiser for GADA Canada
Say hello to Liz (@elizabethelsie7).
In preparation for her first cardiac surgery, Liz has been connecting with others with Marfan Syndrome and is raising money to support GADA’s work.
GADA is truly grateful to Liz and all her supporters who have generously contributed to to her fundraiser!
Here is Liz’s story…
GADA Canada Awards $ 205,000 in Research Grants
GADA Canada is proud to announce that it is awarding $205,000 to three physicians/scientists as part of its 2019 Research Grant Award program.
GADA's commitment to promote new research over the last thirty years, has greatly improved our knowledge of the different genetic aortic disorders and has also led to increasingly successful treatment outcomes for affected individuals. Read More
Promoting Awareness of Genetic Aortic Disorders
15th Annual JASON ‘RUFFY’ KEITH Memorial Raises over $ 2,000 In Pool Tournament Fundraiser
For the 15th year, in April 2018, a Memorial Pool Tournament fundraiser was organized for Jason ‘Ruffy’ Keith by his closest family and friends at Dooly’s in Moncton, NB.
Jason’s family continues to host this event year-after-year to keep Jason’s memories and friends close & more importantly to help increase the awareness of the terrible disorder – Jason passed away in 2003 from Marfan syndrome.
Yet again, the turnout of supporters was exceptional! There were approximately 30 pool players & the place was full of family &friends. The event raised over $ 2,000 in memory of beloved Jason Keith. These proceeds were kindly donated to GADA Canada, Thank you!
Help Raise Awareness of Genetic Aortic Disorders
For the second year, on November 18, 2017, #SailsofLight at Canada Place , Vancouver, will be lit red recognizing awareness of genetic aortic disorders in Canada. GADA is thankful to the Port of Vancouver for helping to spread awareness of all genetic aortic disorders related to Marfan syndrome.
Show your support by connecting with GADA on Facebook and Twitter and share this post through your social networks.
Canada Place Sails of Light are illuminated each evening from dusk to dawn, with seasonal vibrant colours, displays and animation. The Vancouver Fraser Port Authority offers local charities and non-profit events, the opportunity to build awareness for their cause or organization by illuminating the Sails of Light in colours themed to the specific cause.
Remembering FRANKIE AIELLO
In May 2016, Frankie Aiello, died from an acute aortic dissection at the age of 28. Frankie was well-built and a great athlete. Like the Canadian actor, Alan Thicke, Frankie was playing hockey when he experienced chest pain a short while before he passed away.
In May 2017, Frankie’s family hosted a memorial service at the Oshawa Golf Club. Frankie was remembered by his closest family and friends, who donated to GADA $ 1,000 in support of promoting awareness of genetic aortic disorders. Thank you!
We humbly thank Frankie’s brother, Joseph Aiello, and ‘Just Energy Foundation Canada’ for donating $ 485 to GADA in honor of Frankie.
Frankie’s family and friends realize the importance of raising awareness of aortic disorders as an effort to help save lives in the future; for this we are tremendously thankful!
We extend our heartfelt gratitude and to all our members who donated towards our cause in memory of a lost loved one.
14th Annual JASON 'RUFFY' KEITH Memorial Raises $ 1,600 in Pool Tournament Fundraiser
In April 2017, family and friends participated in the 14th annual Jason ‘Ruffy’ Keith Memorial Pool Tournament fundraiser. The memorial fundraiser was organized by Jason’s family at Dooly’s in Moncton, NB.
Once again, the turnout of supporters was exceptional! With 34 pool players and many supporters, the event raised $ 1600 in memory of beloved Jason Keith. These proceeds were kindly donated to GADA Canada.
We are truly grateful to Jason’s parents, Dave and Pam Keith, Jason’s brother, John, and Drew LaPointe, General Manager, Dooly’s, Moncton, NB, for organizing this fundraising event for 14 years in loving memory of their son and brother, Jason. Jason passed away in 2003 from Marfan syndrome.
We are humbled by the continued support received from Jason's friends, family, and the local community who come together every year to cherish Jason's memory and support the work of our organization. THANK YOU!