events

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2021 Year in Review

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As we wrap up the year, with Christmas and the New Year right around the corner, we take a moment to look back on 2021 with pride for all that we achieved towards our mission and gratitude for the support from our members and volunteers.

This year, GADA received its largest grant from the Temerty Foundation to support a five-year strategic plan for growth, re-structuring and technology to achieve our increasing program capacity. We remain immensely grateful to the Temerty Foundation for their continued and growing support for GADA’s cause.

This funding made it possible to for GADA to continue funding the international Montalcino Aortic Consortium (MAC), $261,700 for the expansion of the global patient registry for research of heritable thoracic aortic disorders.

Through this year, we continued to follow COVID-19 precautionary measures while carrying out our programs virtually to promote research, education, awareness and facilitate support activities and connections between patients in different locations.

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2020 News Highlights & Holiday Wishes from all of us at GADA Canada

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GADA Canada would like to wish each and every one of our members a holiday season that is joyous and restorative.
We hope you are able to spend the holidays in good health and good spirits despite the unusual circumstances that we find ourselves in this year.

Every year we take time to acknowledge the strides that we have made in our mission to represent the interests of our membership.

This year, in the context of Covid-19 things have been challenging. However, just like you do every day, we have continued to push ahead.

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15th Annual JASON ‘RUFFY’ KEITH Memorial Raises over $ 2,000 In Pool Tournament Fundraiser

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For the 15th year, in April 2018, a Memorial Pool Tournament fundraiser was organized for Jason ‘Ruffy’ Keith by his closest family and friends at Dooly’s in Moncton, NB.

Jason’s family continues to host this event year-after-year to keep Jason’s memories and friends close & more importantly to help increase the awareness of the terrible disorder – Jason passed away in 2003 from Marfan syndrome.

Yet again, the turnout of supporters was exceptional! There were approximately 30 pool players & the place was full of family &friends. The event raised over $ 2,000 in memory of beloved Jason Keith. These proceeds were kindly donated to GADA Canada, Thank you!

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Help Raise Awareness of Genetic Aortic Disorders

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For the second year, on November 18, 2017, #SailsofLight at Canada Place , Vancouver, will be lit red recognizing awareness of genetic aortic disorders in Canada. GADA is thankful to the Port of Vancouver for helping to spread awareness of all genetic aortic disorders related to Marfan syndrome.

Show your support by connecting with GADA on Facebook and Twitter and share this post through your social networks. 

Canada Place Sails of Light are illuminated each evening from dusk to dawn, with seasonal vibrant colours, displays and animation. The Vancouver Fraser Port Authority offers local charities and non-profit events, the opportunity to build awareness for their cause or organization by illuminating the Sails of Light in colours themed to the specific cause. 
 

Toronto Genetic Aortic Disorders & Marfan Peer Support Network

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In September 2017, GADA hosted a 'Genetic Aortic Disorders & Marfan Peer Support Network' meeting for members of the Greater Toronto Area (GTA). Thanks to the initiative taken by GADA members; Tami Friedman, Nicole Pleten and Katy Hornsby; 17 members from around the GTA, who are affected by a genetic aortic disorder, were happy to connect with each other for peer support.  

The group expressed that the meeting was very beneficial and have planned to get together again for a fun & games meet up on December 2nd @ 11 a.m. at A Game Cafe, Toronto  Click Here for event details

To stay connected with each other, a closed Facebook group has been set up called ‘Friends of GADA GTA’. If interested to join the GTA group or if you would like GADA to help start a support group in your area, please send us an email.

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Dr. Dianna Milewicz Honored with Belgium’s Princesse Liliane Professorship

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Congratulations to Dr. Dianna Milewicz, M.D., Ph.D., Chair of GADA's Professional Advisory Board and Scientific Chair of the Montalcino Aortic Consortium (MAC), on being honored with Belgium’s Princesse Liliane Professorship.

Please read the article, written by Deborah Mann Lake, Office of Public Affairs